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AURORA, Ill. (AP) 鈥� At her mother鈥檚 home in Illinois, Tracy Balhan flips through photos of her dad, Bill Speer. In one picture, he鈥檚 smiling in front of a bucket of sweating beers and wearing a blue T-shirt that reads, 鈥淧ops. The man. The myth. The legend.鈥�

Balhan鈥檚 father died last year after struggling with . During one episode late in his life, he became so agitated that he tried to exit a moving car. Balhan recalls her dad 鈥� larger than life, steady and loving 鈥� yelling at the top of his lungs.

His geriatric psychiatrist recommended she take him to the emergency room at Endeavor Health鈥檚 Edward Hospital in the Chicago suburb of Naperville because of its connection to an inpatient behavioral care unit. She hoped it would help get him a quick referral.

But Speer spent 12 hours in the emergency room 鈥� at one point restrained by staff 鈥� waiting for a psych evaluation. Balhan didn鈥檛 know it then, but her dad鈥檚 experience at the hospital is so common it has a name: ER boarding.

One in six visits to the in 2022 that resulted in hospital admission had a wait of four or more hours, according to an Associated Press and data analysis. Fifty percent of the patients who were boarded for any length of time were 65 and older, the analysis showed.

Some people who aren鈥檛 in the middle of a life-threatening emergency might even wait weeks, health care experts said.

ER boarding is a symptom of the U.S. health care system鈥檚 struggles, including shrinking points of entry for patients seeking care outside of ERs and hospitals prioritizing beds for procedures insurance companies often pay more for.

Experts also warn the boarding issue will worsen as the grows in the coming decades. Hospital bed capacity in the U.S. may not keep up. Between 2003 and 2023, the number of staffed hospital beds was static, even as emergency department visits shot up 30% to 40% over that same period.

Number of hospital beds at issue

For older people , boarding can be especially dangerous, Chicago-based geriatric psychiatrist Dr. Shafi Siddiqui said. One published in June 2024 in the Journal of the American Medical Association looked at more than 200,000 patients and found long ER stays could be linked to a higher risk of dementia patients developing delirium 鈥� a temporary state of mental confusion and sometimes hallucinations.

鈥淧eople need to be enraged about (boarding),鈥� said Dr. Vicki Norton, president-elect of the American Academy of Emergency Medicine.

National emergency physician groups have lobbied for years to keep boarding under control. While they鈥檝e made some progress, nothing substantial has changed, despite concerns that it leads to worse patient outcomes.

Dr. Alison Haddock, president of the American College of Emergency Physicians, said that鈥檚 because boarding is a failing of the entire health care system that manifests in the ER, so solving it demands a systemic approach.

Federal and state policy decisions made nearly 40 years ago limited the number of hospital beds, said Arjun Venkatesh, who studies emergency medicine at Yale. People are now living longer, he said, resulting in more complicated illnesses.

In 2003, there were 965,000 staffed hospital beds compared to 913,000 in 2023, according to the American Hospital Association. And another JAMA published in February shows there are 16% fewer staffed beds in the U.S. post-pandemic.

The ones available may be prioritized for 鈥渟cheduled care鈥� patients who need non-urgent procedures, like cancer care or orthopedic surgeries. Insurance companies pay hospitals more for those surgeries, Haddock said, so hospitals aren鈥檛 likely to move patients into those beds 鈥� even as emergency rooms fill up.

Where can people go?

Though long stays in the emergency department are common, there isn鈥檛 good data that tracks the extremes, emergency medicine experts said.

The Centers for Medicare and Medicaid Services recently that hospitals track the 鈥渕edian鈥� wait times in their emergency departments. An advisory group that develops quality measures for CMS recommended that the agency try to more accurately capture long emergency department stays. That measure has recently been submitted to CMS, which can choose to adopt it.

Patients鈥� families worry that long emergency room stays may make things worse for their loved ones, forcing some to search for limited alternatives to turn for support and care.

Nancy Fregeau lives in Kankakee, Illinois, with her husband Michael Reeman, who has dementia.

Last year, she said he visited the Riverside Medical Center emergency department several times, often staying more than four hours and in one case more than 10, before finally getting access to a behavioral care bed. Riverside declined to comment on Reeman鈥檚 case.

During long waits, Fregeau doesn鈥檛 know what reassurance she can offer her husband.

鈥淚t鈥檚 hard enough for anyone to be in the ER but I cannot imagine someone with dementia being in there,鈥� she said. 鈥淗e just kept saying 鈥榃hen am I going? What鈥檚 happening?鈥欌��

Since November, Reeman has been going to the MCA Senior Adult Day Center in Kankakee. Fregeau said Reeman treats the day center like it鈥檚 his job, offering to vacuum and clean, but comes home happier after having time around other people and away from the house.

In Illinois, there are fewer than there are counties, and other resources for people with dementia are shrinking, too. from the American Health Care Association and the National Center for Assisted Living found that 1,000 nursing homes in the U.S. closed between 2015 and 2022. At least 15 behavioral health centers, which are facilities that specialize in treating mental health issues, in 2023.

With fewer places for patients to go after being discharged, hospital beds are being used for longer, exacerbating the boarding problem. It鈥檚 becoming more difficult to get a specialty hospital bed, especially when patients鈥� dementia causes aggression.

That was the case for Balhan鈥檚 father, who became increasingly agitated during his ER stay. Hospital staff told Balhan the behavioral care unit wasn鈥檛 taking dementia patients, so Speer was stuck in the ER for 24 hours until they found a behavioral health facility, separate from the health system, that would take him.

While the hospital couldn鈥檛 comment on Speer鈥檚 specific situation, Endeavor Health spokesperson Spencer Walrath said its behavioral care unit typically admits geriatric psychiatry patients, including those with dementia, but it depends on factors like bed availability and the patient鈥檚 specific medical needs.

Balhan feels that the U.S. health care system failed to treat her dad as a human being.

"It didn鈥檛 feel to me like he was being treated with any dignity as a person,鈥� she said. 鈥淚f anything could change, that would be the change that I would want to see."

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AP data journalist Kasturi Pananjady contributed to this report.

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This story is a collaboration between , a health reporting collaboration of NPR member stations across the Midwest, and The Associated Press. The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute鈥檚 Science and Educational Media Group and the Robert Wood Johnson Foundation.

Devna Bose/associated Press And Benjamin Thorp/side Effects Public Media, The Associated Press